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Showing 1 to 22 of 22 items tagged as advocacy


Women’s History Online, 1543-1945 (Gerritsen Collection)

database

Provider: ProQuest
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Descriptions: A full-text collection of books, pamphlets and periodicals reflecting the evolution of a feminist consciousness and the growth of the movement for women's rights. Includes publications from Europe, the U.S., the United Kingdom, Canada, and New Zealand.
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International OCD Foundation

website

Provider: International OCD Foundation
Descriptions: The mission of the Foundation is to educate the public and professional communities about OCD and related disorders; to provide assistance to individuals with OCD and related disorders, their families and friends, and to support research into the causes of, and effective treatments for, this disease.
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World Institute on Disability

website

Provider: World Institute on Disability
Descriptions: From the website: "The World Institute on Disability is an internationally recognized public policy center organized by and for people with disabilities. It works to strengthen the disability movement through research, training, advocacy and public education to help people with disabilities throughout the world enjoy increased opportunities to live independently."
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Wing Of Zock

website

Provider: AAMC (Association of American Medical Colleges)
Descriptions: Wing of Zock is a blog from the Association of American Medical Colleges (AAMC.) It provides a new forum for faculty, residents and administrators at U.S. academic medical centers to share best practices in the new health care environment. Posts are to discuss issues in patient safety, innovations in the delivery of care, technology, quality of care, payment reform and other topics affecting patient treatment and medical education.
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Treatment Advocacy Center

website

Provider: Treatment Advocacy Center
Descriptions: The Treatment Advocacy Center is a national nonprofit organization dedicated to eliminating barriers to the timely and effective treatment of severe mental illness. The organization promotes laws, policies and practices for the delivery of psychiatric care and supports the development of innovative treatments for and research into the causes of severe and persistent psychiatric illnesses, such as schizophrenia and bipolar disorder. This site provides a guide to each state's laws governing the eligibility criteria that must be met for commitment for inpatient and outpatient mental illness treatment. A "Library" of free documents is also filterable by state and topic. A searchable section called "Preventable Tragedies" chronicles incidents involving individuals with neurobiological disorders.
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Depression and Bipolar Support Alliance

website

Provider: Depression and Bipolar Support Alliance
Descriptions: The Depression and Bipolar Support Alliance (DBSA) is the nation’s leading patient-directed organization focusing on the most prevalent mental illnesses, depression and bipolar disorder. The organization fosters an understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably.
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ConsumerMedSafety.org

website

Provider: Institute for Safe Medication Practices (ISMP)
Descriptions: This website comes from the nonprofit organization ISMP (Institute for Safe Medication Practices) in partnership with the FDA, the American Hospital Association, the Joint Commission of Healthcare Organizations and others. The ISMP aims to help prevent medication errors through collecting and analyzing reports of medication-related hazardous conditions, near-misses, errors, and other adverse drug events and making the information available to consumers and the health care community. Consumers are encouraged to contribute information here via a forum for reporting medication errors. This site offers a feature (free registration required) called "Get Your 60 Second Medication Check," which lists potential side effects, treatment duplication and drug interactions for various medications. Patient information inserts are also available full text, in .pdf format.
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PRIM&R: Public Responsibility in Medicine & Research

website

Provider: Public Responsibility in Medicine and Research
Descriptions: Via publications and press releases, accreditation, education and networking activities funded through memberships, this organization promotes the ethical treatment of human and animal research subjects. Some of the white papers and general information are freely accessible, but much of the site is restricted to PRIM&R members.
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Office of Dietary Supplements

website

Provider: National Institutes of Health
Descriptions: The National Institutes of Health provide this website in large part to protect consumers and help them to make reasoned choices on dietary supplements. Find downloadable Fact Sheets on about 75 herbal and chemical supplements; also included are news items and health information, safety tips and fraud warnings, and links out to information provided by FDA and USDA websites.
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American Medical Informatics Association (AMIA)

website

Provider: AMIA (American Medical Informatics Association)
Descriptions: This organization "...is dedicated to promoting the effective organization, analysis, management, and use of information in health care in support of patient care, public health, teaching, research, administration, and related policy." Some resources here are for members only. The Education section includes links to podcasts and mp3 files of informatics classes and recorded conference proceedings, many of which are free.
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American Lung Association

website

Provider: American Lung Association
Descriptions: Provides consumer information on pulmonary diseases and conditions, clinical trials, smoking cessation, current research activities, statistics and more.
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National Institute of Mental Health: Mental Health Topics

website

Provider: NIH National Institute of Mental Health
Descriptions: From the website: Mental disorders are common health conditions. Information about the signs and symptoms, diagnosis, and treatment for: * Anxiety Disorders * Attention Deficit Hyperactivity Disorder (ADHD, ADD) * Autism Spectrum Disorders (Pervasive Developmental Disorders) * Bipolar Disorder (Manic-Depressive Illness) * Borderline Personality Disorder * Depression * Eating Disorders * Generalized Anxiety Disorder * Obsessive-Compulsive Disorder (OCD) * Panic Disorder * Post-Traumatic Stress Disorder (PTSD) * Schizophrenia * Social Phobia (Social Anxiety Disorder) Getting Help: Locate Services Locate mental health services in your area, affordable healthcare, NIMH clinical trials, and listings of professionals and organizations.
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National Coalition for Cancer Survivorship (NCCS)

website

Provider: National Coalition for Cancer Survivorship
Descriptions: The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. NCCS organizes Cancer Advocacy Now!™, a legislative advocacy network that engages constituents across the country in federal cancer-related issues. Patient education is also a priority of NCCS.
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American Association of Medical Colleges (AAMC) Facts

website

Provider: Association of American Medical Colleges (AAMC)
Descriptions: The AAMC posts online some of the useful data it gathers on US medical education-- enrollment, matriculation and residency applicants by school, specialty and gender. Links are provided for purchase of its other indispensable data compilations. "Through its many programs and services, the AAMC strengthens the world's most advanced medical care by supporting the entire spectrum of education, research, and patient care activities conducted by our member institutions."
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American Association for Cancer Research- Survivors and Advocates Page

website

Provider: American Association for Cancer Research
Descriptions: This section of AACR's website presents "...an extensive list of cancer support and advocacy organizations, government and research institutions, and useful websites. Find organized lists of groups dedicated to specific types of cancer."
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American Academy of Neurology

website

Provider: American Academy of Neurology
Descriptions: The American Academy of Neurology website provides a wealth of resources for the professional: an online community, CME opportunities, news, links on legislation affecting neurology, practice guidelines, position statements, podcasts, and sections devoted to neurologic specialties. Medical students, residents and fellows get special attention. Medical and PhD students who do not want a subscription to the Academy's journal can still register for free access to certain features of the website. Some resources, podcasts, for instance, are available only to AAN members. A section for patients and caregivers promotes greater understanding of neurology, and provides information on diseases and disorders, as well as links to further information.
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National Coalition for Cancer Survivorship (NCCS)

website

Provider: National Coalition for Cancer Survivorship
Descriptions: The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. NCCS organizes Cancer Advocacy Now!™, a legislative advocacy network that engages constituents across the country in federal cancer-related issues. Patient education is also a priority of NCCS.
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National Alliance on Mental Illness (NAMI)

website

Provider: NAMI
Descriptions: From the website: NAMI (the National Alliance on Mental Illness) is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families. Founded in 1979, NAMI has become the nation’s voice on mental illness, a national organization including NAMI organizations in every state and in over 1100 local communities across the country who join together to meet the NAMI mission through advocacy, research, support, and education. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life of all whose lives are affected by these diseases.
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Mental Health America

website

Provider: Mental Health American (formerly National Mental Health Association)
Descriptions: From the website: Mental Health America (formerly known as the National Mental Health Association) is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. With our more than 320 affiliates nationwide, we represent a growing movement of Americans who promote mental wellness for the health and well-being of the nation – everyday and in times of crisis.
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Alliance for Nursing Informatics (ANI)

website

Provider: Alliance for Nursing Informatics
Descriptions: The Alliance for Nursing Informatics is a coalition of more than 20 nursing informatics groups in the United States. Paraphrasing some of this organization's stated areas of concern: 'providing a mechanism for transforming care; developing resources, guidelines and standards for nursing informatics practice; education, scope of practice, research, certification, public policy, terminology, best practice guidelines; mentoring, advocacy, networking and career services.' A linked list of member organizations and a page of linked news and events are provided, along with information on the TIGER Initiative, which "...seeks to better prepare practicing nurses and nursing students to use technology and informatics to improve the delivery of patient care."
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Alliance for Aging Research

website

Provider: Alliance for Aging Research
Descriptions: The Alliance for Aging Research, a private non-profit, is an advocacy organization dedicated to supporting research on aging through various means-- forming coalitions among related organizations, lobbying, fund-raising and providing information to seniors on common diseases and conditions of aging and on matters of policy. The website contains many useful resources for consumers, including articles, podcasts, links and a blog.
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AHIMA (American Health Information Management Association)

website

Provider: American Health Information Management Association (AHIMA)
Descriptions: AHIMA is a professional organization advocating standards for the confidentiality and security of the patient medical record or personal health record, health information exchange, and the integrity of information practices. The organization's position statements on these and other matters pertaining to health information management and records management are available to read here. AHIMA also provides links to educational and career resources for those considering careers in health information management and for those already in the field.
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