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Showing 1 to 30 of 30 items tagged as patient education


Effective Health Care Program – AHRQ

database

Provider: Agency for Healthcare Research and Quality (AHRQ)
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Descriptions: First funded by Congress in 2005, the Effective Health Care Program funds and synthesizes the findings of teams of researchers and clinicians across North America, to identify ways to improve the quality of health care through evidence-based decision-making. Research summaries are available for consumers (many with Spanish translations), clinicians and policy-makers. Also for patients, short videos on treatment options, helpful comparative charts on the effectiveness of different treatments for various conditions. Many resources in various formats are provided. The Program invites comments and topic research/review suggestions, and data deposit by medical professionals. Links are provided to plug-ins for viewing video content.
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Global Library of Women’s Medicine (GLOWM)

website Descriptions: This website contains both open-access and restricted-access content. Available to all are 44 "chapters" written by professionals on gynecology and obstetrics, gynecologic oncology, maternal/fetal medicine, reproductive endocrinology, genetics and fertility. For medical professionals, free registration provides access to a medical atlas, laboratory tests, a video library and patient education materials. All content is said to be peer-reviewed.
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PubMed Health

database

Provider: National Library of Medicine/National Center for Biotechnology Information
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Descriptions: PubMed Health, covering 2003 to the present, provides summaries and full texts of selected systematic reviews in one place. There is also information for consumers and clinicians based on those reviews. A search on PubMed Health runs simultaneously in PubMed. A filter is used to identify all the indexed scientific articles at the NLM that might be systematic reviews. This search includes articles from before 2003. Information partners selected by PubMed Health to contribute clinical effectiveness information are:

  • Agency for Health Care Research and Quality (AHRQ)
  • Centre for Reviews and Dissemination (CRD)
  • The Cochrane Collaboration (CC)
  • German Institute for Quality and Efficiency in Health Care (IQWiG)
  • National Cancer Institute (NCI)
  • National Institute for Health and Care Excellence guidelines program (NICE)
  • National Institute for Health Research (NIHR) Health Technology Assessment Programme (NIHR HTA)
  • Oregon Health and Science University's Drug Effectiveness Review Project (DERP)
  • Department of Veterans Affairs' Evidence-based Synthesis Program from the Veterans Health Administration R&D (VA ESP)
England's Behind the Headlines service is from the National Health Service (NHS Choices). Also contains information from the A.D.A.M. Illustrated Medical Encyclopedia and Micromedex Consumer Medication Information.
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PEDro – Physiotherapy Evidence Database

database

Provider: The George Institute for Global Health, NSW, Australia
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Descriptions: PEDro is a free database of over 25,000 randomised trials, systematic reviews and clinical practice guidelines in physiotherapy. For each trial, review or guideline, PEDro provides the citation details, abstract and link to the full text, if available. All trials on PEDro are independently assessed for quality. These quality ratings are used to guide users to trials that are more likely to be valid and to contain adequate information to guide clinical practice. PEDro is produced by the Centre for Evidence-Based Physiotherapy at The George Institute for Global Health.
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Twenty four (24) Languages Project

website

Provider: Spencer S. Eccles Health Sciences Library (Univ. of Utah) in partnership with other organizations
Descriptions: The 24 Languages Project is a portal for electronic access to over 200 health education brochures in Arabic, Armenian, Cambodian, Chinese, Croatian, English, Farsi, French, German, Haitian Creole, Hmong, Japanese, Korean, Laotian, Portuguese, Romanian, Russian, Samoan, Serbo-Croatian, Somali, Spanish, Tagalog, Thai, Tongan and Vietnamese languages. In many cases, the information is provided in both .pdf and sound recording formats. All instances of these patient information documents may be downloaded and distributed for noncommercial use. Be advised that most of the information is not available in all languages, and some of the information available has not been updated recently.
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FDA Center for Devices and Radiological Health

website

Provider: U.S. Food and Drug Administration
Descriptions: This FDA portal for the medical device industry and consumers links the user to information on medical devices (both approved and recalled), medical imaging and radiation safety, full text regulations, and more.
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EthnoMed

website

Provider: Health Sciences Library, Harborview Medical Center, University of Washington
Descriptions: EthnoMed was designed to be used in clinics in the few minutes before seeing a patient. This website actually provides an excellent multi-faceted service, a hub of well-rounded ethnic information for those who serve diverse communities. Links to, or full text of, multilingual patient education materials constitute one solid reason for visiting this website. There are also sections that present a wealth of useful and interesting knowledge about cultures-- customs and mores, religion, health beliefs and practices-- helpful to care providers who want to take a correct and culturally competent approach when relating to their immigrant and refugee patients.
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PDQ® – NCI’s Comprehensive Cancer Database

database

Provider: National Cancer Institute
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Descriptions: The PDQ (Physician Data Query) database contains peer-reviewed summaries on cancer treatment, screening, prevention, genetics, supportive care, and complementary and alternative medicine; a registry of thousands of open clinical trials from around the world; and directories of physicians, genetic counseling professionals, and organizations that provide cancer care. Also included are a dictionary of cancer terms, statistics on survival, and a drug dictionary.
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Children’s Rare Disease Network

website

Provider: The R.A.R.E. Project
Descriptions: This website brings together a variety of advocacy, networking, research and educational resources to help parents of children with rare diseases.
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CDC Radiation Emergencies Fact Sheets

website

Provider: CDC (Centers for Disease Control and Prevention)
Descriptions: This sector of the CDC website on radiation emergencies is a prime resource on radiation disasters for public health professionals, emergency responders and individual healthcare practitioners. It presents patient and management information, guidelines and recommendations, and links to additional online training resources, including short videos. Some fact sheets contain general information suitable for the layman: being prepared, sheltering in place and other protective measures, facts about contamination levels and substances in food and water, the difference between contamination and exposure, and more.
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CancerBackup.org

website

Provider: Macmillan.org (UK)
Descriptions: This British cancer website provides information for patients, caregivers and physicians on all aspects of cancer: types, treatments, coping with treatment side effects, pain, etc. Visitors may also communicate about their questions with oncology nurses. Free publications written by expert healthcare providers are available to order in print or to download, and a forum/chat website called "What Now?" is also featured, in which patients share their experiences and provide support to each other.
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Cancer.gov

website

Provider: National Cancer Institute (NCI)
Descriptions: This comprehensive website from the National Cancer Institute (NCI) links the user to detailed information on cancer types, clinical trials, cancer statistics, and funding and research. An agency of the U.S. National Institutes of Health, NCI conducts and supports cancer research as well as providing in-depth information on all aspects of these diseases to the public, including rehabilitation and ongoing care. NCI has launched several programs like the pilot Community Cancer Centers Program with the purpose of bringing improved care to more Americans and promoting international collaboration and cooperation among practitioners and researchers.
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SPIRAL: Selected Patient Information Resources in Asian Languages

website

Provider: Tufts University Hirsh Health Sciences Library/New England Region NN/LM
Descriptions: SPIRAL provides patient handouts for download, in Chinese, Lao, Khmer, Hmong, Thai, Japanese and Vietnamese. Several H1N1/pandemic flu documents are available, along with handouts and brochures on about 30 other diseases and health topics.
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HealthReach – health information in many languages

website

Provider: National Library of Medicine
Descriptions: This website (Formerly RHIN, Refugee Health Information Network) provides links and full-text patient education materials in many hard-to-find and currently relevant languages. (Not all topics are available in all languages.)
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Asian American Diabetes Initiative (AADI)

website

Provider: Joslin Diabetes Center, Boston, MA
Descriptions: Joslin Diabetes Center's Asian American Diabetes Initiative (AADI) Web site is a bilingual (English-Chinese) site with interactive tools dedicated to improving diabetes awareness and management in Asian-American populations.
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Office of Rare Diseases Research

website

Provider: National Institutes of Health
Descriptions: "The ORDR [Office of Rare Diseases Research] Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community."
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AnesthesiaPatientSafety.com

website

Provider: American Association of Nurse Anesthetists
Descriptions: This website informs the consumer or patient about preparing for anesthesia, including possible complications, drug and herbal interactions and anesthesia in children, and provides links to other anesthesia sites with useful information for the consumer.
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NSW Multicultural Health Communication

website

Provider: New South Wales Ministry of Health
Descriptions: The chief resources of interest here that are applicable for healthcare professionals in any country are the multilingual translations available (from Albanian to Urdu) for communicating to patients about a large number of healthcare topics (from domestic violence to yellow fever.) Cue cards in various languages can also be downloaded. Browsing under Publications may yield more useful material.
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National Institute on Aging

website

Provider: U.S. National Institutes of Health
Descriptions: "NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form NIA to provide leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary Federal agency on Alzheimer’s disease research." A large number of free publications, some provided in Spanish, are available for downloading. These include fact sheets, reports and a short e-book, Alzheimer's Disease: Unraveling the Mystery. Links to information about research projects, trials, health- and aging-related organizations, and other related resources are provided.
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National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

website

Provider: National Institutes of Health
Descriptions: The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of these diseases, facilitation of training for basic and clinical scientists who carry out this research, and the dissemination of information on the progress of this research. The site includes a Health Information Index in English and Spanish.
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National Heart, Lung and Blood Institute (NHLBI)

website

Provider: National Institutes of Health
Descriptions: "The Institute plans, conducts, fosters and supports an integrated and coordinated program of basic research, clinical investigations and trials, observational studies, and demonstration and education projects." There is a wealth of information here, through links and integral content, for patients, researchers and health care professionals. Includes information on new clinical trials and provides links to individual clinical trial websites. For consumers, there is a special Health Information Network one can sign up for, which will then feed only the information of particular interest to the individual user.
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American Association for Cancer Research- Survivors and Advocates Page

website

Provider: American Association for Cancer Research
Descriptions: This section of AACR's website presents "...an extensive list of cancer support and advocacy organizations, government and research institutions, and useful websites. Find organized lists of groups dedicated to specific types of cancer."
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American Academy of Neurology

website

Provider: American Academy of Neurology
Descriptions: The American Academy of Neurology website provides a wealth of resources for the professional: an online community, CME opportunities, news, links on legislation affecting neurology, practice guidelines, position statements, podcasts, and sections devoted to neurologic specialties. Medical students, residents and fellows get special attention. Medical and PhD students who do not want a subscription to the Academy's journal can still register for free access to certain features of the website. Some resources, podcasts, for instance, are available only to AAN members. A section for patients and caregivers promotes greater understanding of neurology, and provides information on diseases and disorders, as well as links to further information.
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National Center for Complementary and Alternative Medicine (NCCAM)

website

Provider: National Institutes of Health
Descriptions: "The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine." It is also meant to serve as a source of research-based information for consumers on treatments for conditions which are considered to be "alternatives" to conventional medical treatments. Information is organized primarily in an A to Z listing of Health Topics. Links are also provided to news and current information on relevant topics. Much of the information on the site is available in Spanish.
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MD Anderson Cancer Center – Clinical Trials

website

Provider: MD Anderson Cancer Center
Descriptions: In addition to providing a public resource on the trials currently being conducted at MD Anderson, each page here includes links to text and videos that address patients' more general questions about clinical trials and studies, including eligibility criteria, the phases of a clinical trial, and the benefits and risks of volunteering to participate.
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Joint Commission on Accreditation of Healthcare Organizations (JCAHO)

website

Provider: JCAHO (Joint Commission on Accreditation of Healthcare Organizations)
Descriptions: Established in 1951, the independent, non-profit Joint Commission provides accreditation and certification services for health care facilities-- hospitals, nursing homes, laboratories, home health care providers, etc. and in diverse specialties ranging from critical care to behavioral health. The JCAHO "...seeks to continuously improve health care for the public, in collaboration with other stakeholders, by evaluating health care organizations and inspiring them to excel in providing safe and effective care of the highest quality and value." To that end, it produces standards, goals, certifications, awards, quality reports and consumer resources. Standards address levels of performance in areas such as patient rights, patient treatment, medication safety and infection control. JCAHO publishes reviews, white papers, reports including an Annual Report, National Patient Safety Goals, its Journal on Quality and Patient Safety, and numerous newsletters, some of which are freely accessible here.
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ClinicalTrials.gov

database

Provider: U.S. National Institutes of Health
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Descriptions: ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Currently lists approximately 153,000 studies/trials, with locations in all 50 states and 184 countries.
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Alliance for Aging Research

website

Provider: Alliance for Aging Research
Descriptions: The Alliance for Aging Research, a private non-profit, is an advocacy organization dedicated to supporting research on aging through various means-- forming coalitions among related organizations, lobbying, fund-raising and providing information to seniors on common diseases and conditions of aging and on matters of policy. The website contains many useful resources for consumers, including articles, podcasts, links and a blog.
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AEGiS (AIDS Education Global Information System)

website

Provider: AEGiS
Descriptions: Funded in large part by several foundations and the National Library of Medicine, AEGiS is a portal to a wide spectrum of information about HIV and AIDS. News items (such as information about new treatments and trials) are posted daily. Links to organizations and societies, conferences, law resources, fact sheets, professional medical advice, etc. are provided here.
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AAOS – Your Orthopaedic Connection

website

Provider: American Academy of Orthopaedic Surgeons
Descriptions: AAOS provides clear information for the public here on orthopedic injuries, syndromes and diseases affecting each skeletal area. Some of the information is available in Spanish. Also provided: a news feature and a glossary of orthopedic terms.
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